ACLP Bulletin Summer Cover

ACLP Bulletin

Summer 2019 | VOL. 37 NO. 3

 

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In This Issue


TABLE OF CONTENTS


  1 Introducing The Journal of Child Life: Psychosocial Theory and Practice
  2 Appreciation, Reflections, and the Future
  3 Ethics as a Professional Mandate in Child Life
  6 Honoring Children in Healthcare: An Ethics Based Approach to Acute Decision Making
  9 R is for Research Ethics: Humanizing Qualitative Research Methods
12 Annette Bonjour: 2019 Mary Barkey Clinical Excellence Award Recipient
14 The Ethics Committee of the Child Life Certification Commission
16 The ACLP Code of Ethical Responsibility: Growing with Our Profession
18 An Ethical Focus on Academic Programs and Clinical Internships: Increasing Diversity in Our       
     Professional Population
22 Changing Perspectives: The Cost of Child Life
24 Who's the Boss? Ethical Considerations When Parents Decline Preparation
26 The Ethics of Working in Patients' Homes: Different Considerations for Community-Based Child Life
37 The Border Crisis: Our Ethical Responsibility
42 Book Review: The Spirit Catches You and You Fall Down: A Hmong Child, Her American Doctors,   
     and the Collision of Two Cultures

44 Conference Wrap-Up
50 Specialized Resources: Medical Ethics in Child Life
52 Pathways to Professional Inquiry: Locating, Navigating, and Evaluating Empirical Literature
54 Moments from the Past: New Beginnings


Honoring Children in Healthcare

The Border Crisis: Our Ethical Responsibility


CHILD LIFE FOCUS:

29 Voice and Choice: Upholding Autonomy and Other Critical Ethical Constructs in Pediatrics

Emily Margolis, MS, CCLS
Towson University, Towson, MD

A review of ethics in pediatrics brings up a multitude of healthcare related ethical dilemmas regarding topics such as decision making, informed consent, treatment planning, and research. The four most frequently cited ethical constructs in health related ethics are: autonomy, or the right to self-determination; beneficence, which is doing good; non-maleficence, which is focused upon preventing harm; and justice, which is how society allocates benefits and burdens (Rollins, Bolig, & Mahan, 2005). Allied health professionals, particularly child life professionals, do not need to conduct a literature search to validate the prominence of ethical constructs in their daily clinical work with children, youth, and families. For example, close examination of one's clinical work would reveal such constructs as truthfulness, quality of life, privacy, equity, and least harm. Issues of confidentiality and privacy are quickly identified when child life professionals consider their contributions in interdisciplinary medical team conversations, documentation in the patient record, and collaboration with colleagues. Concerns about quality of life are explored while engaged in conversations with patients and families about treatment planning and the trajectory of care. Professionals often consider the ethics of equality and equity when determining how and where play materials are stored, which patients receive priority time and attention when the professional's hours are finite, and which patients receive pet or music therapy visits. Concepts of truthfulness and full disclosure are expectations of medical education and preparation sessions as a child life professional works with families to determine how and when to discuss upcoming medical interventions with pediatric patients.

Rollins, J.A., Bolig, R., & Mahan, C.C. (2005).
Meeting children's psychosocial needs across the health-care continuum. Austin, TX: Pro-ed.

TOC-Focus Image-Fall 2018




Child Life Focus Articles

Each issue of the ACLP Bulletin features a Child Life Focus article, peer-reviewed in-depth research. These articles are available here.

Individual Pricing
Non-Members: $15
ACLP Members: Free!

PDUs
The PDUs earned (.5 per article) from reading a Focus article and successfully completing the accompanying quiz are considered Independent Learning. There is a 10 PDU maximum limit for this category in the 5-year certification cycle. 

 

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