ACLPBulletinVol36No1cover




ACLP Bulletin

Winter 2018 | VOL. 36 NO.1


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In This Issue


TABLE OF CONTENTS


 1 Real Lessons from an Imaginary Friend
 3 Gaining Strength and Momentum
 5 A commitment to Listening
 6 L is for Legacy (Living)
11 Never Knowing What's Behind That Door: Child Life in Home Care
20 Loose Parts in Hospital Play: Stories From the Front
21 Loose Parts Project: Berlin Heart
34 Point: Older Patients with ASD: Meeting Child Life Support
35 Counterpoint: Could We? Should We? ...Maybe Not
40 Acknowledging a Need for Autism-Specific Education
42 Navigating the New Realities: Incorporating Technology into Child Life Practice
46 Implementing EBP into Child Life Practice: An Introduction to Quality Improvement
48 The Significant Impact of Patient Advocacy and Family-Centered Care in a Healthcare Setting
50 Book Review: Rethinking Children's Play

52 Insight into the Process of Publishing in ACLP Bulletin
53 Connecting Past to Present Practices

Rethinking Play book
PAGE 11

Bear with Heart

Page 21


CHILD LIFE FOCUS:

26 Moving Toward Patient Autonomy: A Case Study in Communication in Adolescent Cystic Fibrosis Care

Amanda J. Young, PhD
University of Memphis, Memphis, TN

Loel Kim, PhD
University of Memphis, Memphis, TN

ABSTRACT

As life expectancy for patients with cystic fibrosis (CF) and other life-impacting chronic illnesses continues to increase, more pediatric patients will transition to adult care. As part of the complex shift in this transition, patients become legally, institutionally, and socially expected to assume a larger role in their own healthcare, which requires more sophisticated communication skills. This article reports a single case study in which two interview participants, a child life specialist and a 16-year-old CF patient, report the same incident through their independent perspectives. In responding to a question about failed communication, both participants independently related the story of the patient trying to persuade doctors to remove her gastric feeding tube. We analyzed their narrative of this series of events using a model called collaborative interpretation (CI), which posits that both patients and providers are experts and joint problem solvers. Our conclusions indicate that child life specialists can serve as models and educators to help adolescent patients master key communication skills as they become co-agents in managing their healthcare.

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Child Life Focus Articles

Each issue of the ACLP Bulletin features a Child Life Focus article, peer-reviewed in-depth research. These articles are available here.

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ACLP Members: Free!

PDUs
The PDUs earned (.5 per article) from reading a Focus article and successfully completing the accompanying quiz are considered Independent Learning. There is a 10 PDU maximum limit for this category in the 5-year certification cycle. 

 

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