The electronic survey was conducted with 50 patients, ages 3-18 years, during a five month period. Participants included inpatients and outpatients in various areas of the hospital. Patients were either given an iPad to take the survey on their own or a child life specialist verbally asked the patient the
survey questions and documented their responses. Survey responses were gathered and stored via a secure database, REDCap. Questions included:
Survey questions aimed to listen to the patient voice and examine patient preferences during procedures as well as desired coping support. In the following paragraphs, we summarize our key findings of the patients’ voice, focused on how the hospital’s culture can best support patients prior to and during procedures.